Addisons Disease Blog
Addison’s Disease
The purpose of this blog is to help The Patients Voice find out more about Addison’s Disease also known as Hypoadrenocorticism, hypocortisolism or chronic adrenal insufficiency.
The Patients Voice is keen to find out how Addison’s Disease is diagnosed, when you found out you were affected by Addison’s Disease, how is it currently treated. We would like to explore whether you are supported emotionally by your family, friends and the healthcare professionals and if you are working, by your employers.
The kinds of things you might like to include would be
Tell us the story of your diagnosis.
- Who diagnosed you? When? What symptoms or events prompted your diagnosis of Addison’s Disease, if any?
- What tests were done to establish or confirm your diagnosis?
- What physicians/specialists have you seen in connection with your Addison’s Disease? Who do you see on an on-going basis? Who do you see but occasionally?
- How have you experienced crisis episodes? What kind of physicial and emotional support do you receive from family, friends, physicians, the emergency services?
- Have you had to change your diet and lifestyle routine to cope with the disease?
If you would like to leave a comment please click on link at the bottom of the page. You can reach our moderator Belinda at belinda.shale@healthcarelandscape.com.
We look forward to your comments
