Welcome to The Patient Experience – a new kind of patient forum

The Patient Experience is a set of discussion forums where patients connect, express their views and share valuable experiences on the subjects of medicine and healthcare. The forums are FREE and open to all.

The forums allow you to interact with other people in your situation and share information and experiences. Thus helping you on your journey through your or a loved one’s medical problems and challenges.

By sharing your story and learning from others The Patient Experience will provide a safe and place to help on the path to wellness.

The service is brought to you by The Patients Voice - a research community dedicated to healthcare and medical information. If you would like to participate in surveys and other kinds of confidential and anonymous research please click here for more information.

Informed patient choice does… July 29, 2010 Angela Elizabeth Allison
Over the last 2 years I have… July 28, 2010 Angela Elizabeth Allison
Coeliacs Disease, were should… July 27, 2010 Angela Elizabeth Allison
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The struggle with Endometriosis… July 15, 2010 Melissa Meyer
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I suffered for a few years… July 14, 2010 Annette
iam type a modrate level… July 10, 2010 selvaraj kannan
how r u omer July 10, 2010 selvaraj kannan
hai how are you how is your… July 10, 2010 selvaraj kannan
hai mahi iam kannan from… July 10, 2010 selvaraj kannan
Thanks Teenielux July 8, 2010 Brian
What were your original symptoms… July 8, 2010 teenielux

Anemia Sickle Cell Disease Blog

Genetic counselling for sickle cell disease

The Patients Voice would like to welcome you to our first blog to discuss sickle cell disease and in particular the process of genetic counselling in your country for potential carriers of the condition.  We are interested in your views as patients, friends, family or healthcare professionals on sickle cell disease.  In particular we are interested in the following questions:

Have you ever been through genetic counseling yourself? Has a friend or family member?
How do you or they feel about the process? Was it conducted in a supportive fashion?
Should it be compulsory or an individual choice?
What could be done to improve the process in your view?
Were counsellors supportive and informative after counselling?

Of course we would appreciate any comments you might have on sickle cell disease in general.  Please feel to contribute you thought and share your experiences. All you need to do is type a nickname of your choice and the put your comments into the box. Your comments are anonymous of course! I look forward to reading your comments Best wishes

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