Myalgic Encephalomyelitis (ME) – what do you miss most about your life before diagnosis?

 Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (ME)
Jan 122012
 

Over the course of the last few weeks we have been running blogs suggested by our readers and this is no exception. One of our readers has asked us to cover the subject of Myalgic Encephalomyelitis or ME.

Interestingly the terms Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (CFS) are normally seen as being synonymous but Sir Donald Acheson noticed that CFS and ME may be distinct, however reference to this difference is very rare.  If you know more about this please do share your knowledge in the comments section below.

With this blog we are interested in exploring a number of areas with people suffering from this kind of fatigue but especially in how your life has changed since diagnosis with ME/CFS?Click here for more

A Patient’s Perspective of Chronic Fatigue Syndrome

 Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (ME)
Sep 012011
 

11 years ago I began experiencing fatigue and concentration issues that progressively got worse until I knew that something was really wrong with me. I had experienced this once before, 5 years earlier. When I was 18 years old I got a horrible flu that left be debilitated for 2 months after my flu symptoms had resolved. Unfortunately this second bout with the illness would be the one that changed everything.

I had started to feel very sick, but to be honest I wasn’t that worried. I thought I would just be able to go to the doctor, get a diagnosis, and take a pill to make me feel better. Little did I know that the next 10 years of my life would be consumed with doctor’s appointments and medical testing. Click here for more

“Creating a New Life with Chronic Illness” by Toni Bernhard

 Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (ME)
Apr 262011
 

In the summer of 2001, I had the next couple of decades of my life mapped out. I’d be teaching law, traveling to visit my children and their families, attending Buddhist meditation retreats.

Suddenly, everything changed. I got a viral infection and have yet to recover. Diagnosis: Chronic Fatigue Syndrome. It has left me mostly house-bound and often bed-bound.

For the first few years of being sick, I lived in what I can only describe as a state of shock. I couldn’t believe I wasn’t getting better. I blamed myself for not recovering, as if it were a personal failing. Click here for more

Medicalinsider.com – a web site for people with Chronic Fatigue Syndrome

 Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (ME), Social Media and other Resources
Apr 072011
 


Medicalinsider.com is a non-profit information resource for sufferers of Chronic Fatigue Syndrome (CFS or CFIDS), covering causes and treatments. Its purpose is to increase the level of awareness of the issues involved in CFS, for patients as well as carers and practitioners; to help patients to get a basic understanding of their individual conditions, as well as giving them pointers to general areas that they may wish to have looked into, and also how to find the right specialist or treatment. Pat has found that it is best to take a proactive approach to one’s health and learning about one’s health, and working together with health practitioners and providing them with valuable feedback, rather than just being a passive patient.Click here for more

© 2012 The Patient Experience Suffusion theme by Sayontan Sinha

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