Neurological disorders » The Patient Experience

The Patient’s View – Migraines and a Peripheral Nerve Stimulator

Neurological disorders, The Patient's View

Apr 262012

I have been suffering from migraines since the age of 13. In 2009 I chose to be part of a study to treat migraines with a peripheral nerve stimulator. This was when I became an advocate. I decided that it was time to end this for me, my daughter and all those that are dealing with this agony day after day. The stim has been helpful but didn’t cover all the area needed. Since my surgery they have improved it and results have been even better than the 30% improvement I’ve gotten.

I was diagnosed as chronic but never believed that it would cause me to become home bound and spending most of my days in my cave, aka the laundry room. Click here for more

Epilepsy – How do you cope?

Neurological disorders

Mar 092012

Indeed epilepsy was one of the first topics when we started to run research blogs (ResBlogs) of our Patient Connection site.

The purpose of this blog remains the same as in previous blogs. That is the opportunity for you to share your stories and information about suffering from or being a caregiver to a person with epilepsy.

In this blog we wish to focus on how epilepsy has affected your lifestyle and what method you use to deal with the frustrations and problems caused by epilepsy. To do this we have focused on a number of questions which it would be great if you could answer. Click here for more

Neuropathic pain – treatments, diagnosis and causes.

Neurological disorders, Pain

Nov 022011

Neuropathic pain is a product of a number of different conditions. It can include diabetes, herpes zoster viral infections, HIV, autoimmune conditions such as multiple sclerosis and malnutrition. Cancer may also cause neuropathic pain either directly or as a side effect of chemotherapy!

The blog focuses on your experience of neuropathic pain and how it was treated and to what degree of success. For example we are interested in particular in the following questions Click here for more

Early signs of aneurysm – getting diagnosed – getting treated – tell your story

Neurological disorders

Oct 252011

An aneurysm (sometimes called aneurism) is a blood filled bulge in the wall of a blood vessel which is similar to a balloon filled with blood but on a microscopic scale. If the aneurysm ruptures (i.e. explodes) the outcome can, in some cases be fatal.

Aneurysms often take place at the base of the brain while an “aortic aneurysm” occurs in the artery carrying blood from the left ventricle (pumping chamber) of the heart. There are a number of medical conditions which increase the chances of an aneurysm. These include polycystic kidney disease, diabetes, obesity, hypertension, tobacco use, alcoholism, high cholesterol, copper deficiency, and simply getting older.

Symptoms for a non –ruptured aneurysm may consist of fatigue, loss of balance, double vision, and various speech problems. Symptoms of a ruptured aneurysm can include severe headaches, neck pain, and pain behind the eyes as well as loss of balance. Click here for more

Welcome to The Patient Experience

Welcome to The Patient Experience – a new kind of patient forum

The Patient Experience is a set of discussion forums where patients connect, express their views and share valuable experiences on the subjects of medicine and healthcare. The forums are FREE and open to all.

The forums allow you to interact with other people in your situation and share information and experiences. Thus helping you on your journey through your or a loved one’s medical problems and challenges.

By sharing your story and learning from others The Patient Experience will provide a safe and place to help on the path to wellness.

The service is brought to you by The Patients Voice - a research community dedicated to healthcare and medical information. If you would like to participate in surveys and other kinds of confidential and anonymous research please click here for more information.