Chronic Fatigue Syndrome Blog

Myalgic Encephalomyelitis

Welcome to our new Blog on Chronic Fatigue Syndrome and Myalgic Encephalomyelitis
The Patients Voice is running a blog into the impact of Chronic Fatigue Syndrome and Myalgic Encephalomyelitis on quality of life of patients and their families. It would be really great if you could share your story with us and comment on the experiences of others if you can.
In particular we are interested in the following questions:-

• How long have you had CFS/ME?
• How did you condition start, gradually, over many years or decades? Or after a particular incident or infection? How did the symptoms change or intensify?
• What diagnostic methods were used? Who did you see about it?
• What types of treatment have you had and how successful were they?

These questions are only a guide and so please feel free to bring up any other issues that you consider are relevant to you. Even if you do not have Chronic Fatigue Syndrome and Myalgic Encephalomyelitis yourself but are a caregiver of somebody with CFS/ME we would be very keen to hear your story.

Thanks very much in advance for your help. Remember, a blog is really like having a conversation with lots of people at the same time and so please check back on the blog to see what others have said so that if you would like to add to their thoughts you can.

To take part, all you need to do is scroll down to the comments area, type in a nickname of your choice and then put your comments into the box. We look forward to reading your comments and, of course, thank you very much for your input. Finally can I ask you to bear in mind when you blog that your comments will not just be read by other bloggers and The Patients’ Voice team but also the clients for whom we work.

Please leave a comment below.