Crohns Disease Blog
The purpose of this blog is to help The Patients’ Voice find out more about of your experiences of the diagnosis and treatment of Crohn’s disease, Ulcerative Colitis and other forms of Inflammatory or Irritable Bowel Disease.
The Patient’s Voice is keen to find out how Crohn’s and other forms of IBS currently being treated.
We would like to explore how those affected by Crohn’s disease and all IBS felt whilst undergoing therapy, how the treatment impacted on life, how they coped with side effects and remission.
Please feel free to tell us your story or those of family or friends.
The kinds of things you might like to include would be
- Tell us the story of your diagnosis. Who diagnosed you? When? How did you, your family learn about the disease? What symptoms or events prompted your diagnosis of Crohn’s disease or IBD?
- What physicians/specialists have you seen in connection with your Crohn’s disease , Ulcerative Colitis and other forms of Inflammatory Bowel Disease? Who do you see on an on-going basis? Who do you see but occasionally?
- How did you, your family learn about the Crohn’s disease or IBD, from diagnosis and throughout the disease process?
- Were there any resources you found useful?
- How do you manage the disease on a daily basis?
- Have you had to change your diet or lifestyle to cope with the disease? What support did you receive from family, friends, and medical professionals?
- How did you and your family make decisions between the medical options available to you?
- How did you choose physicians? Hoe did you decide which therapy route to undergo? What were the main triggers?
I look forward to your comments and ideas
