Welcome to The Patient Experience – a new kind of patient forum

The Patient Experience is a set of discussion forums where patients connect, express their views and share valuable experiences on the subjects of medicine and healthcare. The forums are FREE and open to all.

The forums allow you to interact with other people in your situation and share information and experiences. Thus helping you on your journey through your or a loved one’s medical problems and challenges.

By sharing your story and learning from others The Patient Experience will provide a safe and place to help on the path to wellness.

The service is brought to you by The Patients Voice - a research community dedicated to healthcare and medical information. If you would like to participate in surveys and other kinds of confidential and anonymous research please click here for more information.

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Why not join the patients voice by clicking here.

Fibromyalgia Blog

The aim of this blog is to find out more about the experiences (and stories) of people and the families of people who have been diagnosed with fibromyalgia. The reason for this is the ambiguous attitude to the syndrome by physicians. Indeed a number of physicians consider the condition to be psychosomatic.

We would like to focus therefore on the story of the diagnosis of fibromyalgia. In particular we are interested in the following questions:-

  • What symptoms did you exhibit before diagnosis? Had you previously been diagnosed with a trigger conditions such as Lyme’s Disease?
  • What was your physicians’ attitude to your symptoms? Did you decide to change doctors?
  • How would you like to see the diagnostic process improved?
  • Finally if you have any advice for other patients or suggestions as to other resources please do not hesitate to add them to your blog comments.

Thanks very much in advance for your help. Please fell free to check back on the blog to see what other have said and perhaps contribute further thoughts.

I look forward to reading your comments and, of course, thanks very much for your help.

Best wishes

Belinda

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