Haemochromatosis Blog
Haemochromatosis Blog
Talk about Haemochromatosis
The purpose of this blog is to help The Patients Voice find out more about the diagnosis of Haemochromatosis and how its is treated. Please fell free to tell us your story or those of family or friends.
The kinds of this you might like to include would be
- Tell us the story of your diagnosis. Who diagnosed you? When? What symptoms or events prompted your diagnosis, if any?
- Do other people in your family have haemochromatosis? Before your own diagnosis, were you aware of a family history of the disease?
- What tests were done to establish or confirm your diagnosis?
- What physicians/specialists have you seen in connection with your HH? Who do you see on an on-going basis? Who do you see but occasionally?
I look forward to your comments and ideas
Best wishes
Belinda
