Welcome to The Patient Experience – a new kind of patient forum

The Patient Experience is a set of discussion forums where patients connect, express their views and share valuable experiences on the subjects of medicine and healthcare. The forums are FREE and open to all.

The forums allow you to interact with other people in your situation and share information and experiences. Thus helping you on your journey through your or a loved one’s medical problems and challenges.

By sharing your story and learning from others The Patient Experience will provide a safe and place to help on the path to wellness.

The service is brought to you by The Patients Voice - a research community dedicated to healthcare and medical information. If you would like to participate in surveys and other kinds of confidential and anonymous research please click here for more information.

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Hepatitis C Blog

The Patients Voice welcomes you to our Blog which looks at the life experiences of people suffering from hepatitis C (Hep C) infectious disease which affects the liver.

Around 300 million people across the globe are infected with hepatitis C virus (HCV). Most people have few, if any symptoms after the initial six months after infection. But HCV persists in the liver in about 85% of those infected. Hepatitis C can be treated with medication, normally peginterferon and ribavirin. Only about 50% of patients are fully cured.

Some Hepatitis C patients require a liver transplant due to the development of cirrhosis or liver cancer.

The Patients Voice is particularly interested to hear your views and experiences about the following questions regarding infection with Hep C:-

  • What were the first symptoms you exhibited which made you think that you had Hepatitis C?
  • What was the diagnostic process like? How easy was it to receive the diagnosis?
  • What were the reactions of friend’s family and colleagues to your Diagnosis with Hepatitis C?
  • What sort of treatments have you received? How effective have they been?
  • Have you had or do you expect to have a liver transplant? What are your concerns about this operation?

Obviously these are just suggestions so please bring up anything you think other readers of the blog will find of interest. Please do include links to any site you have found helpful.

Remember, a blog is really like having a conversation with lots of people at the same time and so please check back on the blog to see what others have said so that if you would like to add to their thoughts you can.

To take part, all you need to do is scroll down to the comments area, type in a nickname of your choice and then put your comments into the box. We look forward to reading your comments and, of course, thank you very much for your input! Please do add any links which you think will be of interest to other readers and contributors to the blog.

Thanks
Belinda

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