Welcome to The Patient Experience – a new kind of patient forum

The Patient Experience is a set of discussion forums where patients connect, express their views and share valuable experiences on the subjects of medicine and healthcare. The forums are FREE and open to all.

The forums allow you to interact with other people in your situation and share information and experiences. Thus helping you on your journey through your or a loved one’s medical problems and challenges.

By sharing your story and learning from others The Patient Experience will provide a safe and place to help on the path to wellness.

The service is brought to you by The Patients Voice - a research community dedicated to healthcare and medical information. If you would like to participate in surveys and other kinds of confidential and anonymous research please click here for more information.

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Why not join the patients voice by clicking here.

Lupus Blog

Please feel free to tell us your Lupus story and please bear in mind that everything you say can be anonymous and therefore cannot be connected with you. Just select the name or nickname you wish to use and start typing.

There are a number of areas in which we have a particular interest:-

  • How were you diagnosed with Lupus? Do you suffer from Lupus Nephritis? Was you condition drug induced?
  • What is you current medication regime? Does this have impact on any other areas of your health?
  • How do you treat flares and how common are they for you?
  • What future developments would you like to see from healthcare providers
  • How do you rate the treatment you have received so far?
  • Is there any advice you would like to share with fellow sufferers and any resources you would recommend?

Thanks for your participation which is very much appreciated.

Best wishes

Belinda

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