Multiple Sclerosis Blog
The purpose of this blog is to help The Patients’ Voice find out more about living with Multiple Sclerosis and how its is treated, its effect on home and the environment.
Please feel free to tell us your story or those of family or friends.
While issues like Tysabri prescription are specifically related to the UK we are keen to hear the views of people from all over the world
The kinds of this you might like to include would be
- Tell us the story of your diagnosis. Who diagnosed you? When? What symptoms or events prompted your diagnosis, if any?
- What sort of medication were you/are you offered?
- Did you change you lifestyle, your diet?
- Are you working? If so, have attitudes changed at all with your employers and /or work colleagues?
- What kind of support do you have at home? Tell us how you manage.
- What physicians/specialists have you seen in connection with your Multiple Sclerosis? Who do you see on an on going basis? Who do you see but occasionally?
- NICE, the Government’s drug watchdog, has recommended against the prescription of one of the most effective drugs so far developed to treat Multiple Sclerosis ie TYSABRI what are your thoughts on this?
I look forward to your comments and ideas as it will help us plan research into Multiple Sclerosis over the next few months.
Thanks
Belinda
